Text Box: Tumors in the brain and spinal cord (CNS tumors) are the 2nd most common cancer in children. Tumors in the brain or spinal cord may languish for long periods with no growth, or they can dramatically increase in size in just a few days. CNS tumors are the most common solid tumors in children. 100 Questions and Answers About Brain Tumors Gliomas, also known as primary brain tumors, start in the brain or spinal cord tissue and are always fatal. The American Cancer Society estimates that 20,500 malignant tumors of the brain or spinal cord will be diagnosed during 2007 in the United States, and that about 12,740 people will die from these tumors. Publication University of California, San Francisco Every year, about 3,100 children in the United States are found to have brain and spinal cord tumors. A Resource Guide For Parents of Children with Brain or Spinal Cord Tumors. Most studies of cognitive decline following brain tumor treatment have occurred in children. These children were long-term survivors (5 years or longer) and most had received surgery and radiation therapy. 100 Questions and Answers About Brain Tumors As the chance of cure continues to rise for children with cancer (now at about 70 % for all tumors combined), it has been estimated that, by the year 2010, as many as one in 250 young adults will be a survivor of childhood cancer. This success has been achieved mainly by making the treatment tougher, especially using more drugs in bigger doses. However, this tougher treatment may also cause damage long after it has finished. These effects are being seen more often and may result in serious illness that affects normal functioning. Late Effects of Cancer and its Treatments A sizable percentage of children still die from the disease. In fact, childhood cancer kills more children then any other disease in the United States. The death of a child causes almost unendurable pain and anguish for loved ones left behind. Death from a CNS tumor comes after months or years of debilitation treatment, emotional swings, and financial crises. The family begins the years of grief already exhausted from the years of fighting the tumor. It is truly every parent’s worst nightmare. Childhood Brain & Spinal Cord Tumors (A Guide for Families, Friends & Caregivers)

 

Rachael’s Ribbons of Hope

4514 G E. Juniper Dr.

USAFA, CO 80840

 

Phone: 719-302-6042

E-mail: rachaelsribbons@comcast.net

Rachael's Ribbons of Hope is founded by family and friends of Rachael Newton. Our mission is to raise funds for brain tumor research and heighten public awareness of this devastating disease in the hopes of finding a cure.

We are in the process of becoming a non profit foundation. We started this foundation to continue what Rachael had wanted to do, raise money to aid in research for a cure.

We are starting with a board of five members that all share the same goals. Lynette Newton, Chairperson, mother to Rachael; Jenny Lehl, Vice Chairperson, family friend; Melissa Barczik, Treasurer, family friend; Bonny Robley, Secretary, Rachael's cousin; Ryan Robley, board member, Rachael's cousin by marriage. We are starting out a new and small foundation but hope to grow quickly.

We are partnered with The Brain Tumor Institute at Children's National Medical Center in Washington, D.C., which is ran by Dr. Roger Packer MD.

Rachael’s ribbons of hope foundation

Statistics

Our Hope is the Cure